I, too, have TOS and I live in MN. I thought I was the only one to spend hours upon hours between providers and insurance. In MN, there is a Legislative Advisory board for Rare Diseases.
Just Google MN Rare Disease Statute 62.Q.451, it should come up.
This law was to prevent health plans denying people/children with rare diseases treatment, even if it of state or out of network.
This advisory board has only existed for 1 year.
I called my TOS specialist and asked if TOS is a rare disease and he said yes.
Oh and I record every conversation on the speaker feature and record on another device. 🙄 it has saved me big time with being able to tell them I have a recording contradicting what they are telling me now and what I was told on then I give date and time.
I wish for your a restful night and take deep breathes and hopefully soon, you will get some answers.
Hi Mara,
I, too, have TOS and I live in MN. I thought I was the only one to spend hours upon hours between providers and insurance. In MN, there is a Legislative Advisory board for Rare Diseases.
Here is the MN statute regarding rare diseases.
https://www.revisor.mn.gov/statutes/cite/62Q.451#:~:text=(a)%20No%20health%20plan%20company,restrictions%20through%20any%20prior%20authorization%2C
Just Google MN Rare Disease Statute 62.Q.451, it should come up.
This law was to prevent health plans denying people/children with rare diseases treatment, even if it of state or out of network.
This advisory board has only existed for 1 year.
I called my TOS specialist and asked if TOS is a rare disease and he said yes.
Oh and I record every conversation on the speaker feature and record on another device. 🙄 it has saved me big time with being able to tell them I have a recording contradicting what they are telling me now and what I was told on then I give date and time.
I wish for your a restful night and take deep breathes and hopefully soon, you will get some answers.
Thank you this is super helpful!
Omg! This is infuriating. However, I felt the 13 minutes I used to read this were well spent. Hoping you get the resolution you want soon!!!